First Timer

Our Wonderful Family

Katherine Renee

Mommy and Katie at her 2nd Birthday

Daddy and Katie at Thanksgiving

So I'm starting this blog with a preface

1. I'm not very computer savy

2. English was my worst subject, so I'm not sure how creative this will be

3. I can't type

We'll see what happens!

Anyway, here's my Katie's story.

She was born on November 4, 2008. She was very small, 3 lbs. 4 ozs., 14.75 inches. Thankfully, she was healthy. No breathing tubes or oxygen, but she wasn't the greatest eater. She ended up coming home to us 19 days later with a feeding tube. She had it for 9 months, but is now doing great. Many doctor appointments later, she was diagnosed with primordial dwarfism. We found a wonderful doctor at DuPont in Delaware, and he and his team have been taking great care of her. Well, these children are prone to vascular problems in the brain so they have annual MRI's just to be on the safe side. Katie's most recent scan did show some problems. It's official term is moyamoya (means puff of smoke in Japanese). Basically means the arteries in the brain are narrowing and she needs surgery. With some assistance we decided on Boston Children's to have her surgery. She will have a cerebral angiogram(closer look at the arteries) on Dec. 8th and the surgery will be on the 13th. We will be staying with friends in between the test and surgery. I went to school up there, and JJ was stationed in Cape Cod while in the Air Force. We actually met in Boston, thanks to Megan and Cara...thanks for that:) Boston is a safe, happy place for us...

Here's the link to the Children's Website if you're interested.

http://www.childrenshospital.org/clinicalservices/Site2156/mainpageS2156P9.html

We also sold our townhouse. Who knew that in this market it would sell so fast. We put it on the market in the middle of October thinking it would take at least 6 months to sell. We were wrong. It sold in 3 weeks. So in the meantime, we are living back with my mom...she's amazing, and totally comforting...Once Katie is recovered, and my mom is sick of us:0 we will start to look at homes again. Probably early spring.

I will be using this blog to communicate and fill people in on KT's progress. According to the docs the typical recovery time is 5-7 days, so we should be home by Christmas. Thanks to all for your support and prayers. Couldn't do this without you....